What do people need?
Date
2020Author
Betteridge, Neil
Camilleri, Connie
Stoyanoff, Linda
Kopansky-Giles, Deborah
Guzman, Josef de
Makri, Souzi
Mwaniki, Lillian
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Abstract
The key question addressed in this Chapter is “What do people
need?“, with “people” here meaning those who live with a rheumatic or musculoskeletal disease. The word “patient” is avoided at
this point as not all of the problems or solutions identified are
medical in nature. Many are personal, societal and/or environmental. The lead authors are all people who not only live with a
rheumatic or musculoskeletal disease, but who are experienced
“patient representatives”. Therefore, their insights here stem from
a combination of personal and collective experiences and views.
Although from different continents, the authors identify a range of
common barriers to social participation and optimum management of these conditions, such as late diagnosis, stigma and access
to care. However, several solutions are common across these regions too, such as the need for supported self-management and
greater public awareness of the impact of these diseases.
Palabras clave
RMDs (rheumatic and musculoskeletal diseases); Self-management; Stigma; Access; Social inclusion; Early diagnosis; Patient empowerment; Patient involvementLink to resource
https://doi.org/10.1016/j.berh.2020.101567Collections
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