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dc.creatorBetteridge, Neil
dc.creatorCamilleri, Connie
dc.creatorStoyanoff, Linda
dc.creatorKopansky-Giles, Deborah
dc.creatorGuzman, Josef de
dc.creatorMakri, Souzi
dc.creatorMwaniki, Lillian
dc.date.accessioned2020-08-31T14:21:00Z
dc.date.available2020-08-31T14:21:00Z
dc.date.created2020
dc.identifier.issn1521-6942spa
dc.identifier.otherhttps://doi.org/10.1016/j.berh.2020.101567spa
dc.identifier.urihttp://hdl.handle.net/20.500.12010/12451
dc.description.abstractThe key question addressed in this Chapter is “What do people need?“, with “people” here meaning those who live with a rheumatic or musculoskeletal disease. The word “patient” is avoided at this point as not all of the problems or solutions identified are medical in nature. Many are personal, societal and/or environmental. The lead authors are all people who not only live with a rheumatic or musculoskeletal disease, but who are experienced “patient representatives”. Therefore, their insights here stem from a combination of personal and collective experiences and views. Although from different continents, the authors identify a range of common barriers to social participation and optimum management of these conditions, such as late diagnosis, stigma and access to care. However, several solutions are common across these regions too, such as the need for supported self-management and greater public awareness of the impact of these diseases.spa
dc.format.extent12 páginasspa
dc.format.mimetypeimage/jepgspa
dc.language.isoengspa
dc.publisherBest Practice & Research Clinical Rheumatologyspa
dc.sourcereponame:Expeditio Repositorio Institucional UJTLspa
dc.sourceinstname:Universidad de Bogotá Jorge Tadeo Lozanospa
dc.subjectRMDs (rheumatic and musculoskeletal diseases)spa
dc.subjectSelf-managementspa
dc.subjectStigmaspa
dc.subjectAccessspa
dc.subjectSocial inclusionspa
dc.subjectEarly diagnosisspa
dc.subjectPatient empowermentspa
dc.subjectPatient involvementspa
dc.titleWhat do people need?spa
dc.type.localArtículospa
dc.subject.lembSíndrome respiratorio agudo gravespa
dc.subject.lembCOVID-19spa
dc.subject.lembSARS-CoV-2spa
dc.subject.lembCoronavirusspa
dc.rights.accessrightsinfo:eu-repo/semantics/embargoedAccessspa
dc.type.hasversioninfo:eu-repo/semantics/acceptedVersionspa
dc.rights.localAcceso restringidospa
dc.identifier.doihttps://doi.org/10.1016/j.berh.2020.101567spa
dc.type.coarhttp://purl.org/coar/resource_type/c_2df8fbb1spa


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